Meet Zach

Growing up

It took 20 years to get a Dravet syndrome diagnosis for Zach. For him and his mom, Leslie, those years were frustrating—just waiting for answers, waiting for relief, waiting to grow up. Once they received that diagnosis, a whole world of connections and information opened up to them—which ultimately led to EPIDIOLEX.

“The Zach that I know is fun, happy…I really think he’s the happiest person I’ve ever met in my whole life.”

As Zach started to see a reduction in his seizures, Leslie noticed a bigger change in him. He became a little more independent and became interested in new things.